Dynamic Data Sharing Hub with Consent Flow
We link semantic to SSI and open the field of complex criteria search with an authentic consent flow A first level search on semantic allows data to flow only when consent has been notified Patients and clinical trials actors are intimately linked
Project Information
- Project ID
- eSSIF-BOC1-02
- Countries
- austria, france, poland, switzerland
Related Products
Software or product(s) created or improved through this project
Additional Information
The concept of our Dynamic Data Sharing Hub (DDSH) is born from our experience in the health sector The exchange of large and sensitive data drives complexity and costs to unprecedented levels in clinical trials Worse complexity leads to opaque data governance and loss of trust by patients Without surprise privacy concerns slow down innovation
Our innovation adds consent into digital information search Patient information is made available only if a consent receipt from a legitimate source is made available Pharma interest is preserved through the concept of 'Data Enrichment'
DDSH starts with a Data Capture Hub (DCH) to create an ecosystem of harmonised data Then data is in a state ready for secondary data sharing A first search is done at the semantic level Once the consent receipt has been recorded authorised data is exchanged All flagged PII data are encrypted (or removed) Data can be shared across multiple stakeholders through a Data Sharing Hub
Our innovation adds consent into digital information search Patient information is made available only if a consent receipt from a legitimate source is made available Pharma interest is preserved through the concept of 'Data Enrichment'
DDSH starts with a Data Capture Hub (DCH) to create an ecosystem of harmonised data Then data is in a state ready for secondary data sharing A first search is done at the semantic level Once the consent receipt has been recorded authorised data is exchanged All flagged PII data are encrypted (or removed) Data can be shared across multiple stakeholders through a Data Sharing Hub
End-User Relevance
We bring actors of clinical trials into a private sphere We facilitate data exchange between any parties<br>Patients keep control of their data without administrative burden Pharmas do not rely on expensive data intermediaries
Disclaimer: Project represent the status of the technology at the time of the project Please contact the Human Colossus Fondation for an updated status Read full project summary at at https://gitlabgrnetgr/essif-lab/business/SSISharing/data-sharing-hub
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